How Would You Know If You Have Lyme Disease

Questions To Ask Your Doctor

• I found a tick embedded in my skin, but I cant get it out. What should I do?
• Ive been bitten by a tick. Do I need to be seen?
• Do I need a blood test to confirm Lyme disease?
• Which antibiotic is best for me?
• How long will I have to take the antibiotic?
• What tick or insect repellent should I use for me or my child?
• How long will the symptoms last?
• What should I do if I still dont feel well a long time after I was bitten?

What Causes Lyme Disease

Lyme disease is caused by bacteria. In the United States, this is usually a bacterium called Borrelia burgdorferi. It spreads to humans through the bite of an infected tick. The ticks that spread it are blacklegged ticks . They are usually found in the:

• Northeast
• Upper Midwest
• Pacific coast, especially northern California

These ticks can attach to any part your body. But they are often found in hard-to-see areas such as your groin, armpits, and scalp. Usually the tick must be attached to you for 36 to 48 hours or more to spread the bacterium to you.

Achy Stiff Or Swollen Joints

Joint pain and stiffness, often intermittent, are early Lyme symptoms. Your joints may be inflamed, warm to the touch, painful, and swollen. You may have stiffness and limited range of motion in some joints .

Pain may move around. Sometimes your knees may hurt, whereas other times its your neck or your heels. You may also have bursitis . Bursae are the thin cushions between bone and surrounding tissue.

The pain may be severe, and it may be transitory. More than one joint may be affected. Most often the large joints are involved .

People often attribute joint problems to age, genetics, or sports. Lyme should be added to that list, as these statistics indicate:

• One study estimates that 80 percent of people with untreated Lyme have muscle and joint symptoms .
• Fifty percent of people with untreated Lyme have intermittent episodes of arthritis .
• Two-thirds of people have their first episode of joint pain within six months of the infection .
• Use of anti-inflammatory drugs may mask the actual number of people with joint swelling .

Summary:

Joint pain that comes and goes, or moves from joint to joint, could be a sign of Lyme.

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Lyme Disease Infection Timeline

Infection time: 24 to 36 HoursIn order to be infected by a tick bite, a tick must be attached for at least 24 hours. If you think thats a long time to not even know you have a tick on you, think again. Nymph ticks are so tiny, they often go unnoticed. Thats why they are the biggest spreaders of Lyme infection. Its easy for a person or a pet to have a tick attached for 24 to 36 hours unnoticed. Some people never know they had a tick attached at all!

Early symptoms begin to show: Within 30 DaysIf a person shows early symptoms of Lyme, it usually occurs within 30 days after infection. The problem is, many never show symptoms, or overlook their symptoms. People, who work outdoors, or spend lots of recreational time outdoors, should be mindful of potential early onset Lyme disease symptoms. Fever, fatigue, and body aches are among the most common symptoms, as well as a bulls eye rash around the tick bite. If symptoms do not occur within 30 days, they can be more severe. Early Lyme disease can be cured with doxycycline. The length of treatment will depend on whether the infection is localized or has begun to spread through the body.

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Monitor Your Symptoms Carefully

You have to strictly monitor your symptoms regardless of whether your test results came back positive or negative or whether you were prescribed a course of antibiotics or not. If you develop new symptoms or if your existing symptoms persist or worsen, you have to alert your doctor. This is because, sometimes, your test may have been a false-negative or the course of antibiotics may not be working effectively.

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What Happens At Your Appointment

The GP will ask about your symptoms and consider any rash or recent tick bites you know about.

Lyme disease can be difficult to diagnose. It has similar symptoms to other conditions and there’s not always an obvious rash.

2 types of blood test are available to help confirm or rule out Lyme disease. But these tests are not always accurate in the early stages of the disease.

You may need to be retested if you still have Lyme disease symptoms after a negative result.

The Blood Tests Can Have False Positives

The blood tests can trigger false positives, suggesting that you have the disease when you really dont. This can happen in up to one out of four tests.

This can lead to unnecessary treatment with antibiotics. These drugs are usually safe, but they sometimes cause side effects, such as nausea, vomiting, diarrhea, and increased sensitivity of the skin to sunlight. In rare cases, they can even cause dangerous allergic reactions.

Using too many antibiotics can also lead to the growth of drug-resistant bacteria. This means that bacteria in your body may get stronger and more difficult to treat with antibiotics in the future.

A false positive can also lead to more unneeded blood tests, urine tests, X-rays, and doctor visits.

If you have a false positive, you may not get treated for the real cause of your pain. For example, rheumatoid arthritis is a disease that causes joint pain. It can lead to permanent and severe joint damage if you do not start taking the right medicines as early as possible.

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Symptoms Of Lyme Disease

People with Lyme disease may react to it differently, and the symptoms can vary in severity.

Although Lyme disease is commonly divided into three stages early localized, early disseminated, and late disseminated symptoms can overlap. Some people will also present in a later stage of disease without having symptoms of earlier disease.

These are some of the more common symptoms of Lyme disease:

• a flat, circular rash that looks like a red oval or bulls-eye anywhere on your body

• other flu-like symptoms

These symptoms may occur soon after the infection, or months or years later.

Your child may have Lyme disease and not have the bulls-eye rash. According to an early study, results showed roughly 89 percent of children had a rash.

Lyme disease is best treated in the early stages. Treatment for early localized disease is a simple 10- to 14-day course of oral antibiotics to eliminate the infection.

Medications used to treat Lyme disease include:

• doxycycline, amoxicillin, or cefuroxime, which are first-line treatments in adults and children
• cefuroxime and amoxicillin, which are used to treat women who are nursing or breastfeeding

Intravenous antibiotics are used for some forms of Lyme disease, including those with cardiac or central nervous system involvement.

After improvement and to finish the course of treatment, healthcare providers will typically switch to an oral regimen. The complete course of treatment usually takes 1428 days.

How Do You Know If Your Lyme Disease Is Treated And Finished

Patients ask me this question all the time. We diagnose the disease, we treat with antibiotics, or herbs, or homeopathics. We feel better. We stop the treatment. And either we continue to feel better, or we relapse and have to start all over again.

Is there no way to test whether the spirochete is gone?

The Lyme disease.org website has an excellent article ondiagnosis of Lyme disease.

The National Geographic website has a good description of the deer tick, and thehistory of Lyme disease.

Standard Lyme testing includes the following:

• ELISA or IFA test
• If that test is positive, then a Western Blot test is run
• If 5 out of the 10 possible Lyme bands are positive, you are diagnosed with Lyme disease
• If fewer than 5 of the 10 possible bands are positive, you are diagnosed as negative.

Not all the bands which appear on a Western blot are specific to Lyme disease even though one ofthose non-specific bands is required by the CDC for diagnosis.

Two of the bands which are specific to Lyme disease are not on the CDC list of bands required to be positive.

How much sense does that make?

For more detailed information about the IFA and Western blot testing, check out theIGeneX website.

There is another test that can give us an idea whether the Lyme disease is actually gone out of our systems. This is an inflammatory marker, so it tells us whether there is continued inflammation or whether that inflammation is no longer present.

Bottom line:

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Early Signs And Symptoms

• Fever, chills, headache, fatigue, muscle and joint aches, swollen lymph nodes
• Bulls-eye rash at the site of the bite after, on average, 7 days
• Rash expands gradually, reaching up to 12 inches or more across
• May feel warm to the touch but is rarely itchy or painful
• Rash may appear on any area of the body

Lyme Disease Is Remarkably Difficult To Diagnose

The problem with Lyme disease is that the bacteria can create a hard shell around themselves when inactive so that the blood tests are unable to detect them. This is especially true when the disease has reached the chronic stage. The timing of the symptoms is often used by a medical provider to establish a time line to a tick bite or exposure to a high-risk region where the disease is commonly transmitted.

Because the ticks that can spread Lyme disease are often the size of a pinhead, the ticks might not even be notice. A bulls-eye rash at the bite location is a trademark symptom of Lyme disease, but only about half of the people who are infected with the bacteria develop the rash. Once the disease reaches the chronic stage, chronic arthritis, joint pain, and neurological symptoms begin to appear, sometimes several months after the infection.

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What Do I Do If I Find A Tick On My Skin

Dont panic. Use fine-tipped tweezers to grasp the tick as close to the skins surface as possible. Pull up with steady, even pressure. Be careful not to squeeze or twist the tick body. Sometimes parts of the tick remain in the skin. You can leave them alone or carefully remove them the same way you would a splinter. Do not use heat , petroleum jelly, or other methods to try to make the tick back out on its own. These methods are not effective.

Wash the area where the tick was attached thoroughly with soap and water. Keep an eye on the area for a few weeks and note any changes. Call your doctor if you develop a rash around the area where the tick was attached. Be sure to tell your doctor that you were bitten by a tick and when it happened.

Which Areas Are More Likely To Have It

The tick that causes Lyme disease has been moving from the Northeast and upper Midwest into the Southern and Western U.S., Mexico, and Canada. Cases in California and Florida are on the rise. After a drop between 2017 and 2018, the numbers jumped a little bit in 2019.

But most Lyme cases in 2019 were in 15 states: Connecticut, Delaware, Maine, Maryland, Massachusetts, Minnesota, New Hampshire, New

Jersey, New York, Pennsylvania, Rhode Island, Vermont, Virginia, West Virginia, and Wisconsin. Washington, DC, is also a hotspot.

In 2019, Pennsylvania had the most Lyme infections, with 6,763. New York was next, with 2,847 cases.

In the Southern U.S., where itâs hotter, ticks stay under leaves so they don’t dry out. This means people donât get Lyme from Southern ticks very often because they don’t usually come out to bite.

Even though people only report about 30,000 cases of Lyme infection in the U.S. each year, there are actually around 476,000 a year. The same tick also can spread other diseases, including babesiosis, anaplasmosis, and Powassan virus. Those diseases are also on the rise in the U.S.

Whoâs likeliest to get Lyme disease?

Boys up to age 15 and men between the ages of 40 and 60 are the most likely to get Lyme disease. Thatâs because they tend to play outside and go camping, hunting, and hiking.

Why are there more ticks now than there used to be?

There are several reasons why Lyme is spreading. Some of these are:

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Living With Lyme Disease

Most people treated in the early stages of Lyme disease make a quick and complete recovery. Some may experience symptoms for a few weeks after treatment. If you were treated for Lyme disease but you still dont feel well, call your family doctor. He or she can make sure there isnt something else wrong. They can help you find ways to ease your symptoms. Some patients have found relief with treatments typically used for chronic fatigue syndrome or fibromyalgia.

Other things you can do to help manage Lyme disease include:

• Educate yourself.There is a lot of inaccurate information to be sorted through, especially on the internet. Ask your doctor if you have questions.
• Track your symptoms.Keep a diary of your sleep patterns, eating habits, exercise routines, and how youre feeling. You or your doctor may be able to make connections between them.
• Take care of yourself.Eat a healthy diet. Exercise as regularly as you can. Get plenty of rest.

Find support. It can be hard to not feel well and not know why. Some people may think your symptoms arent real. Talk to friends and family. If they cant offer support, talk with a counselor who can help you.

What Are The First Signs And Symptoms Of Lyme Disease

In the first early localized stage of Lyme disease the skin at the site of the tick bite becomes infected with Borrelia burgdorferi bacteria which can cause an expanding round or oval red skin lesion called erythema migrans. This may or may not be associated with flu-like symptoms within days to a month after the tick bite such as achiness, chills, fever, sweats, fatigue, malaise, headache, stiff neck, muscle soreness, joint pain, swollen lymph nodes, and sore throat. The combination of the skin lesion and flu-like symptoms are the primary manifestations of acute stage Lyme disease. Acute Lyme disease is not associated with typical cold-like symptoms of runny nose, prominent cough, or prominent diarrhea.

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What’s The Best Way To Prevent A Tick Bite

Ticks can’t fly or jump. But they live in shrubs and bushes and can grab onto you when you pass by. To avoid getting bitten:

• Wear pants and socks in areas with lots of trees and when you touch fallen leaves.
• Wear a tick repellent on your skin and clothing that has DEET, lemon oil, or eucalyptus.
• For even more protection, use the chemical permethrin on clothing and camping gear.
• Shower within 2 hours after coming inside. Look for ticks on your skin, and wash ticks out of your hair.
• Put your clothing and any exposed gear into a hot dryer to kill whatever pests might be on them.

How do you know if you’ve been bitten?

Since ticks are so small, you’ve got to have pretty good eyes to see them.

If you have a small, red bump on your skin that looks like a mosquito bite, it could be a tick bite. If it goes away in a few days, itâs not a problem. Remember, a tick bite doesnât necessarily mean you have Lyme disease.

If you notice a rash in the shape of a bull’s-eye, you might have a tick bite. Talk to your doctor about treatment.

If you have an allergic reaction to ticks, you’ll notice a bite right away.

Who’s At Risk And Where Are Ticks Found

The risk of getting Lyme disease is higher:

• for people who spend time in woodland or moorland areas
• from March to October because more people take part in outdoor activities

Ticks are found throughout the UK and in other parts of Europe and North America. There are a high number of ticks in the Scottish Highlands.

It’s thought only a small proportion of ticks carry the bacteria that cause Lyme disease. Being bitten doesn’t mean you’ll definitely be infected. However, it’s important to be aware of the risk and speak to a GP if you start to feel unwell.

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Stage : Late Disseminated Lyme Disease

Late disseminated Lyme disease occurs when the infection hasnt been treated in stages 1 and 2. Stage 3 can occur months or years after the tick bite.

This stage is characterized by:

• arthritis of one or more large joints
• brain disorders, such as encephalopathy, which can cause short-term memory loss, difficulty concentrating, mental fogginess, problems with following conversations and sleep disturbance
• numbness in the arms, legs, hands, or feet

Key Points To Remember

• Most Lyme disease tests are designed to detect antibodies made by the body in response to infection.
• Antibodies can take several weeks to develop, so patients may test negative if infected only recently.
• Antibodies normally persist in the blood for months or even years after the infection is gone therefore, the test cannot be used to determine cure.
• Infection with other diseases, including some tickborne diseases, or some viral, bacterial, or autoimmune diseases, can result in false positive test results.
• Some tests give results for two types of antibody, IgM and IgG. Positive IgM results should be disregarded if the patient has been ill for more than 30 days.

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