Diagnosed With Lyme Disease Now What

Do I Need A Lyme Disease Test

Your doctor will consider whether your symptoms and risk factors suggest Lyme disease when deciding whether you need a Lyme test. Laboratory tests can support a clinical diagnosis, but should not be used on their own to confirm or rule out a current Lyme disease diagnosis.

Your doctor may also do tests to see if other conditions with similar or overlapping symptoms for example, thyroid disease, autoimmune disease, or other tick-borne diseases could be causing your symptoms. If you have been traveling, your doctor might test you for species of Borrelia that cause Lyme disease in other parts of the world.

If you think you may have Lyme disease, but your doctor hasnt considered it or has ruled it out before testing you for it, heres how you can start a conversation: Give your doctor a list of Lyme disease symptoms and risk factors , and ask them if, given your own symptoms and risk factors, Lyme disease could be a possible cause and whether you should be tested.

In some cases, a Lyme test may not be helpful. Using todays tests it is difficult to distinguish between current and previous infections, so if you were previously diagnosed with Lyme disease and may have been re-infected, your doctor should make the diagnosis based on your symptoms and risk factors.

Tick Testing

What Can I Expect Long Term If My Child Has Lyme Disease

If Lyme disease is caught and treated early, most children will make a full recovery. Some children with Lyme disease go on to experience what’s called a post-infectious syndrome with symptoms that may include feeling fatigue, joint aches and pains, headaches, difficulty sleeping, and problems concentrating. Since the infection itself is gone by this time, doctors generally don’t prescribe antibiotics. Each child is different, but it’s not uncommon for symptoms of post-infectious syndrome to linger for months, or even years, and they can be made worse by stress or other illness. But most children do make a full recovery.

Blacklegged, or deer, ticks are very small, so it helps to know what to look for when doing a tick check. Adults are about the size of sesame seeds and in the nymph or larva stage, they can be as tiny as a poppy seeds.

A Long Journey Of Pain And Misdiagnosis

Tait estimates that she had Lyme for about 15 years before she was diagnosed. She thinks she was bitten by a tick as a teen in Californias Bay Area, where she grew up. In high school, she was a dancer. Suddenly she was getting injured more than usual joints coming out of their sockets and ligaments tearing after doing normal routines. During class, she was exhausted and having trouble concentrating. Her grades started to slip.

Looking back, its now clear I was neurologically starting to not be myself, she said. But when youre a teenager, a lot of it is just attributed to, Youre a teenager!

Tait, who was thin with a bubbly personality, recalled one doctor telling her she was too pretty to be sick.

Eventually she was diagnosed with depression and prescribed an antidepressant.

In college, Tait started to experience seizures and was diagnosed with epilepsy.

My fatigue was getting worse, she said. I was dropping out of classes left and right and I would get sick constantly. Thats where this weird sort of self-fulfilling prophecy came in: I was depressed. But I wasnt sick because I was depressed. I was depressed because I was sick.

But once they put epilepsy down , at least I had turned a corner where they had a label on something, Tait continued. Then would just add things You have fibromyalgia and you probably also have chronic fatigue syndrome. But they didnt tell me how to fix it. Everything was, Try antidepressants because we dont really know.

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Can Lyme Disease Be Prevented Or Avoided

The best way to prevent Lyme disease is to avoid being bitten by ticks. When you are outdoors, follow these guidelines:

• Avoid areas that are wooded, brushy, or have tall grass.
• Walk in the center of trails.
• Use an insect repellent with at least 20% DEET. It can be put on clothing or sparingly on the skin. Dont apply it to the face or hands of children.
• Treat clothing, tents, or other gear with repellents containing 0.5% permethrin.
• Wear light-colored clothing. This makes it easier to see and remove ticks from your clothes.
• Wear a long-sleeved shirt and long pants. Tuck your pant legs into your socks or boots for added protection.

After you get home, check everything and everyone for ticks.

• Bathe or shower as soon as you can to wash off any ticks that have not attached to you.
• Check your entire body for ticks. Use a mirror for places you cant see. Check your children and your pets. Common tick locations include the back of the knees, groin area, underarms, ears, scalp, and the back of the neck.
• Check any gear you used, including coats, backpacks, or tents.

Tumble dry clothes or blankets on high heat in the dryer for 10 to 15 minutes. This should kill any ticks. If clothes are dirty, wash them in hot water and dry on high heat for 60 minutes.

How You Get Lyme Disease

If a tick bites an animal carrying the bacteria that cause Lyme disease, the tick can become infected. The tick can then transfer the bacteria to a human by biting them.

Ticks don’t jump or fly. They climb on to your clothes or skin if you brush against something they’re on. They then bite into the skin and start to feed on your blood.

Generally, you’re more likely to become infected if the tick is attached to your skin for more than 24 hours. Ticks are very small and their bites are not painful, so you may not realise you have one attached to your skin.

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What Do I Do If I Find A Tick On My Skin

Dont panic. Use fine-tipped tweezers to grasp the tick as close to the skins surface as possible. Pull up with steady, even pressure. Be careful not to squeeze or twist the tick body. Sometimes parts of the tick remain in the skin. You can leave them alone or carefully remove them the same way you would a splinter. Do not use heat , petroleum jelly, or other methods to try to make the tick back out on its own. These methods are not effective.

Wash the area where the tick was attached thoroughly with soap and water. Keep an eye on the area for a few weeks and note any changes. Call your doctor if you develop a rash around the area where the tick was attached. Be sure to tell your doctor that you were bitten by a tick and when it happened.

Cdc Supports The Development Of New Tests

New tests may be developed as alternatives to one or both steps of the two-step process. Before CDC will recommend new tests, they must be cleared by the Food and Drug Administration . For more details, see: Recommendations for Test Performance and Interpretation from the Second National Conference on Serologic Diagnosis of Lyme Disease.

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Where Are Ticks Found

Ticks are found throughout the UK and in other parts of Europe and North America. There are a high number of ticks in the Scottish Highlands.

They can be found in any areas with deep or overgrown plants where they have access to animals to feed on.

They’re common in woodland and moorland areas, but can also be found in gardens or parks.

What To Do If Youve Just Been Diagnosed With Lyme Disease

So youve just been diagnosed with Lyme disease. Now what?

1. Dont panic!

The amount of doom and gloom about Lyme disease on the internet may make you think you have something worse than anthrax. Just remember that more than half of people who catch Lyme disease recover completely, and even a sizeable proportion of the rest of them do recover quite well.

If youve started treatment within 6 weeks of getting ill, your outlook is extremely good.

2. Check the dosage of your medication.

You should have been prescribed an antibiotic to treat your Lyme disease. The doses for Lyme disease are longer and higher than for most infections, and with the NICE guideline still fairly new, some doctors are not yet aware of this.

For most cases of Lyme disease, you should have 21 days of antibiotics in the first instance. For some symptoms the treatment time will be longer and for some, less-often used antibiotics, the time may be shorter.

The correct dosage of Amoxycillin for adults is 1,000mg taken three times per day, meaning you should have a total of 3,000mg of this antibiotic every day for 21 days. This is double the dose for most other infections.

Check all the recommended treatments and dosages for Lyme disease here.

3. You may feel worse before you feel better

With most antibiotic treatments, you realise you are feeling better after a few days and its all gravy from there! With Lyme disease, some people have a horrible first few days.

4. Plan a breakfast without milk

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Key Points To Remember

• Most Lyme disease tests are designed to detect antibodies made by the body in response to infection.
• Antibodies can take several weeks to develop, so patients may test negative if infected only recently.
• Antibodies normally persist in the blood for months or even years after the infection is gone therefore, the test cannot be used to determine cure.
• Infection with other diseases, including some tickborne diseases, or some viral, bacterial, or autoimmune diseases, can result in false positive test results.
• Some tests give results for two types of antibody, IgM and IgG. Positive IgM results should be disregarded if the patient has been ill for more than 30 days.

When To See A Healthcare Provider

Prompt treatment for Lyme disease reduces the risk of lingering symptoms and complications. If youve already been treated with antibiotics but continue to experience issues, talk to your healthcare provider to determine if additional treatment is necessary. Patience and proactive communication with your healthcare professional will help you get back to your usual state of health.

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How Many People Get Lyme Disease

There is no way of knowing exactly how many people get Lyme disease. A recently released estimate based on insurance records suggests that each year approximately 476,000 Americans are diagnosed and treated for Lyme disease.1,2 This number is likely an over-estimate of actual infections because patients are sometimes treated presumptively in medical practice. Regardless, this number indicates a large burden on the health care system and the need for more effective prevention measures.

Q: CDC previously estimated that ~300,000 people get Lyme disease each year.3,4 Why is this new number different?

Both estimates are based in part on insurance claims data, however the 476,000 estimate uses more recent information covering the years 2010-2018. In addition, there are some differences in the detailed methods used to develop the two estimates. Its important to emphasize that 476,000 is the estimated number of people treated for Lyme disease and likely includes some patients who were not actually infected.

Q: CDC also states that approximately 35,000 cases of Lyme disease are reported each year. Why is this number so different?

Q: How often does CDC plan to estimate how many people get Lyme disease?

As additional robust sources of data become available, CDC will use them to better understand how Lyme disease affects the American public.

Healthsee The Full Today Series On How Women Are Treated Or Mistreated At The Doctor’s Office

For women who have Lyme disease, the struggle can be especially difficult, given the complicated nature of the disease.

“The problem with Lyme disease is that there are so many different strains,” said Dr. Andrea Gaito, a New Jersey-based rheumatologist who specializes in treating Lyme disease. “One person can have it and have headaches, someone else can have joint pain, someone else can have palpitations. And none of these are specific to Lyme. There’s no Lyme test that’s 100% accurate. Unless you have a tick in a baggie, literally, and a bulls-eye rash, there’s sometimes a delay in diagnosis.”

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Can Lyme Disease Be Prevented

Most people with Lyme disease get the infection during the late spring, summer and early fall when immature ticks are out feeding. In warm climates, few tick bites take place during winter months.

Deer ticks are most often found in wooded areas and nearby grasslands. Theyre especially common where the two areas merge, including neighborhood yards where deer occasionally roam. Ticks dont survive long on sunny lawns. They dry out quickly and die.

Although only about 1% of all deer ticks carry Lyme disease-causing bacteria, there are areas in which over 50% of the ticks carry the bacterium. The diseased ticks are often found in the U.S. Northeast and upper Midwest areas. Ticks also live in coastal areas.

Black-legged ticks can get the infection from animals other than deer. Mice, voles and some squirrels can carry the bacteria.

How can I prevent tick bites?

The following tips can help you avoid tick bites:

Stage : Late Disseminated Lyme Disease

Timing: Months to years after a tick bite

The infection can spread to the joints or contribute to altered brain function, a condition known as encephalopathy.

Common symptoms of late disseminated Lyme disease include:

• Arthritis with joint pain, warmth, and swelling that may be constant or come and go. Lyme disease-related arthritis typically occurs in one joint, usually the knee or another large joint, though it can also occur in more than one joint.

• Concentration issues, brain fog, and memory issues

• Nerve pain that feels like tingling, numbness, burning, or stabbing in the hands and feet

• Anxiety, depression, mood swings, and other neuropsychiatric issues

• Sleep disturbances such as difficulty falling or staying asleep, need for extended sleep, or unrefreshing sleep.

You may also experience a worsening of earlier Lyme disease symptoms.

In some people, Lyme disease can cause debilitating fatigue and sleep disturbances . Lyme disease-related arthritis typically occurs in a large joint like the knee .

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Which Areas Are More Likely To Have It

The tick that causes Lyme disease has been moving from the Northeast and upper Midwest into the Southern and Western U.S., Mexico, and Canada. Cases in California and Florida are on the rise. After a drop between 2017 and 2018, the numbers jumped a little bit in 2019.

But most Lyme cases in 2019 were in 15 states: Connecticut, Delaware, Maine, Maryland, Massachusetts, Minnesota, New Hampshire, New

Jersey, New York, Pennsylvania, Rhode Island, Vermont, Virginia, West Virginia, and Wisconsin. Washington, DC, is also a hotspot.

In 2019, Pennsylvania had the most Lyme infections, with 6,763. New York was next, with 2,847 cases.

In the Southern U.S., where itâs hotter, ticks stay under leaves so they don’t dry out. This means people donât get Lyme from Southern ticks very often because they don’t usually come out to bite.

Even though people only report about 30,000 cases of Lyme infection in the U.S. each year, there are actually around 476,000 a year. The same tick also can spread other diseases, including babesiosis, anaplasmosis, and Powassan virus. Those diseases are also on the rise in the U.S.

Whoâs likeliest to get Lyme disease?

Boys up to age 15 and men between the ages of 40 and 60 are the most likely to get Lyme disease. Thatâs because they tend to play outside and go camping, hunting, and hiking.

Why are there more ticks now than there used to be?

There are several reasons why Lyme is spreading. Some of these are:

What Are The Risk Factors For Post Treatment Lyme Disease

Risk factors for Post Treatment Lyme Disease include:

• Delay in diagnosis
• Increased severity of initial illness
• Presence of neurologic symptoms

Increased severity of initial illness, the presence of neurologic symptoms, and initial misdiagnosis increase the risk of Post Treatment Lyme Disease. PTLD is especially common in people that have had neurologic involvement. The rates of Post Treatment Lyme Disease after neurologic involvement may be as high as 20% or even higher. Other risk factors being investigated are genetic predispositions and immunologic variables.

In addition to Borrelia burgdorferi, the bacteria that causes Lyme disease, there are several other tick-borne co-infections that may also contribute to more prolonged and complicated illness.

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Can Lyme Disease Completely Be Cured

Taking oral antibiotics typically cures Lyme disease after two to four weeks. You may need to get antibiotics through the vein for four more weeks. However, theres no reason to think that Lyme disease stays in you forever after treatment.

A note from Cleveland Clinic

If youre going to spend time in an area that might have ticks, take measures to avoid being bitten. This includes wearing long-sleeved shirts and pants to make it harder for ticks to bite. If you feel sick after being in an area that probably has ticks, make an appointment with your healthcare provider. If your provider prescribes antibiotics, make sure you take all of them as instructed.

Chronic Lyme Dos And Don’ts

Chronic Lyme disease is an ongoing Borrelia burgdorferi infection that can involve any body system or tissue. The infection produces a wide range of symptoms and signs, which can be debilitating for some patients. Common symptoms include severe fatigue, migratory musculoskeletal pain, headaches, and impaired memory. Unfortunately, chronic Lyme disease is complex and often misunderstood, which means that many patients will struggle to obtain the care they need to regain their health. Every patient concerned about Lyme disease and tick-borne illness should know the following.

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