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Lyme Disease Not Treated For Years

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How Do You Know If You Have Chronic Lyme

Lyme Disease, Animation

Chronic Lyme disease is an ongoing Borrelia burgdorferi infection that can involve any body system or tissue. The infection produces a wide range of symptoms and signs, which can be debilitating for some patients. Common symptoms include severe fatigue, migratory musculoskeletal pain, headaches, and impaired memory.

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The disease can be debilitating if not diagnosed early on. The first sign of a Lyme disease infection is usually a bullseye-shaped skin rash. Early signs and symptoms may include fever, headache, fatigue, depression, and a characteristic skin rash called erythema migrans. The rash occurs in approximately 75% of infected people. Approximately 20 to 30% of people develop joint pains or neurological problems.

Symptoms Of Late Stage Lyme Disease

The CDC reports that late stage Lyme disease may appear days to months after the initial tick bite and may include but are not limited to:

  • Severe headaches and neck stiffness
  • Additional EM rashes in new places on the body
  • Facial palsy, also known as Bells palsy paralysis of one side of the face
  • Arthritis or joint pain and swelling, especially of large joints
  • Intermittent tendon, muscle, joint, nerve, or bone pain
  • Heart palpitations or arrhythmia
  • Dizziness or shortness of breath
  • Inflammation of the brain or spinal cord
  • Shooting pains, numbness, or tingling in the hands or feet

As mentioned above, late stage Lyme may also be characterized by the recurrence of early stage symptoms, such as fatigue.

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Selection Of Study Subjects

From 1976 through 1983, 582 subjects with facial palsy, erythema migrans, or Lyme arthritis were entered into the initial studies of Lyme disease at Yale . All these patients were evaluated by one of us . Details of the patients’ clinical pictures were recorded, and serum samples were frozen at 70°C for any subsequent determinations. Of 582 subjects, 126 had moved from the area, were lost to follow-up, or had died. In 1994, in an effort to obtain as many patients as possible who had had facial palsy for the current study, all 44 patients who had this manifestation and still lived in the area were contacted, and 31 agreed to participate. Of the 412 patients who had erythema migrans or Lyme arthritis without neuroborreliosis, a random sample was selected by random number table to obtain similar numbers in each of the patient groups. Of the 52 patients in the erythema migrans group who were contacted, 26 agreed to participate and 26 declined. Of the 56 patients in the Lyme arthritis group who were contacted, 30 agreed and 26 declined.

How Stephanie Got Answers

107 best images about Lyme disease on Pinterest

About four years ago, Tait started to suspect she had Lyme disease. A family friend had Lyme, and Tait recognized some of her own symptoms appearing in her friend. She asked her doctor for an ELISA, an enzyme-linked immunosorbent assay, or a blood test thats typically the first way doctors test patients who may have Lyme disease. When she learned her insurance wouldnt cover the cost, she paid for the test out of pocket. It came back negative.

Tait, however, wasnt convinced. She asked for another test, but she said the doctor refused. So she turned to a private lab for a second test, this one a Western Blot, which doctors typically turn to next, to verify a positive ELISA result. That test was positive for the Lyme antibodies.

I sobbed, because there it was in my hands that I wasnt just jumping to conclusions, Tait said. I walked back into my doctors office and said, Here it is. They said, Well, we didnt do this test, so how do we know? I said, Youve got to be kidding me. I have a lab test!

Tait started getting treatment at a private clinic in Idaho that specializes in treating Lyme disease, about a six-hour drive from where she lives.

Lyme disease is typically treated with antibiotics, and when treated early, people with Lyme usually recover completely. Taits treatment plan included antibiotics, immunotherapy, various supplements as well as dietary changes. But because she had been sick for so long, some of her health problems were irreversible.

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Why Is Lyme Disease So Difficult To Diagnose

Lyme disease is a bacterial infection transmitted through the bite of infected deer ticks. One common symptom of Lyme is a red rash on the skin , that appears at the site of a tick bite usually within a week, but up to a month later. Some people may not experience a rash, or may mistake it for a spider bite. Other symptoms like fever, chills, headache, fatigue, joint aches and swollen lymph nodes may occur in the absence of a rash, according to the Centers for Disease Control and Prevention.

If Lyme is not diagnosed immediately, the bacteria start to spread to other parts of the body the joints, the nervous system and the heart. Eventually, arthritis sets in, along with extreme fatigue and general aches and pains. These can also be symptoms of other conditions, which is part of the reason why Lyme is difficult to diagnose. Aside from the initial rash, there are no symptoms that are specifically indicative of Lyme disease.

Theres also no definitive way to test for Lyme disease. There is no direct blood test for the bacteria that causes Lyme. Doctors have to rely on antibody tests, which merely measure the immune systems response to the bacteria. Further complicating matters, studies have shown that those tests arent always accurate and can have poor sensitivity and false results in some cases.

Until a foolproof test exists, diagnosing Lyme disease, especially late-stage Lyme, is an imperfect science.

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Early Localized Lyme Disease

Early localized disease, the initial manifestation, begins between three and 30 days after a bite. It is characterized by:

  • Bullseye rash and swelling,the most notorious symptom, occurs in 70% to 80% of cases. Clinically referred to as erythema migrans, its appearance variesit can be a different color or shapeespecially in people of color. It arises about a week after exposure to the bacteria.
  • Other symptoms of the first stage include fever, fatigue, headache, and joint pain. Very often, those with the conditionespecially if there is no rashfeel as if theyre experiencing the flu.

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What Is The Outlook For Someone With Lyme Disease

Most of the people who get Lyme disease and receive treatment early will be fine. Treatment can cure Lyme disease but you might still have some long-term effects. Untreated Lyme disease may contribute to other serious problems but its rarely fatal.

Post-treatment Lyme disease syndrome

Even after proper treatment, some people may experience lingering fatigue, achiness or headaches. This is known as post-treatment Lyme disease syndrome or PTLDS. The symptoms dont mean that you still have an infection. PTLDS probably wont respond to additional antibiotics. The majority of people in this group will have symptoms that resolve at some point over the next six months.

Chronic Lyme disease

Chronic Lyme disease is a term used by some for a condition in a person who had Lyme disease and the symptoms of PTLDS. Some people consider chronic Lyme disease to be the same as PTLDS. However, some people receive a chronic Lyme disease diagnosis without a Lyme disease diagnosis. Sometimes, extended treatment with antibiotics helps.

This term may be why some people think a Lyme disease infection can occur without being bitten by a tick. There isn’t enough proof that mosquitoes can transmit Lyme disease. Many researchers dislike using the term chronic Lyme disease.

Diagnosis Of Lyme Disease

Lyme Disease Prophylaxis After Tick Bite

Diagnosis is currently based on clinical findings supported by several types of laboratory tests. One type of test seeks to isolate the actual organism from the EM skin lesion, blood, joints, and cerebrospinal fluid. Other types of tests attempt to detect antibodies formed by the patients immune system against the organism. Currently, serology tests are poorly standardized and physicians must interpret them with caution. They are insensitive during the first several weeks of infection and may remain negative in people treated early with antibiotics. Test sensitivity increases when patients progress to later stages of the disease, but a small proportion of Lyme disease patients never develop a positive blood test result. Another complicating factor is that there can be a cross-reaction in the blood test, giving a false positive result for Lyme disease in persons who really have conditions such as syphilis, Rocky Mountain spotted fever, human immunodeficiency virus infection, infectious mononucleosis, lupus or rheumatoid arthritis. Although present diagnostics are not perfect, great strides have been made in the past twenty years. More sensitive and specific tests for Lyme disease are being developed.

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Complications Of Untreated Lyme Disease

If unchecked, the Lyme disease infection can spread to other bodily systems, causing significant damage. Untreated, complications of this condition can be very severe:

  • Arthritis:Prolonged infection with Lyme disease leads to chronic joint inflammation and swelling, usually in the knees . These symptoms tend to arise within two years of infection, with periods of flare-ups and remissions. This arthritis is relatively difficult to manage, though antibiotics and steroids may be attempted.
  • Lyme carditis:If the bacteria reach the heart tissues, they can cause inflammation and lead to heart block. The electrical signals being sent between the upper and lower chambers of the heart are interrupted, impairing the coordination of the heartbeat. Though disruptive, this is rarely fatal.
  • Lyme neuroborreliosis:Inflammation of multiple nerves, including those in the spine and brain, is the chief characteristic of this condition. This can also affect the meningesthe layer of tissue surrounding the brain and spineleading to meningitis, among other conditions. Antibiotic therapy, if applied promptly, tends to be effective as a treatment.

Even in cases where Lyme disease has progressed, antibiotic regimensespecially drugs like doxycyclineare generally successful in resolving problems.

How Many Years Can Lyme Disease Lay Dormant

Lyme disease can remain dormant for weeks, months or even years. When symptoms do eventually develop, they can be severe and patients often need aggressive treatment. Intravenous treatment is often required to treat late-stage infection. Late-stage treatment can last many months as seen in other infections as well.

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Warning Signs Of Untreated Lyme Disease In Dogs

Both humans and dogs are susceptible to a bacterial illness known as Lyme disease. The illness, which is transmitted by certain species of ticks, can create a number of health complications throughout the body, especially when left undiagnosed and untreated.

Identifying the symptoms of Lyme disease in dogs can be more complicated than with humans, though, due to the different ways the illness may affect your pets health and produce symptoms. But identifying Lyme disease is crucial to getting your dog effective treatment for this condition. Avoiding doing so may lead to rare but serious health complications that may affect your dogs quality of life or even put their life at risk. Take a few minutes to educate yourself on the common Lyme symptoms in dogs, and what you can do to treat and prevent this condition.

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In this blog, you will learn:

  • What the signs and symptoms of Lyme Disease are
  • How Lyme Disease is diagnosed
  • Why it is important to get a correct diagnosis so that treatment can be targeted and effective

Do your clients suffer from fatigue, headaches or muscle or joint pain? Do they have Lyme Disease and do you know how to treat it? Then this blog on Lyme Disease is for you. Please read on for the details!

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** Please note: If you want the short summary version of this article, then please click here **

What is Lyme Disease ?

Lyme Disease is a bacterial infection, caused by Borrelia burgdorferi. Borrelia is a bacterium that is transmitted by an infected black-legged tick. It is most commonly spread by a tick bite. The disease is named after Lyme, Connecticut, where it was first identified in 1975 in the US.

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Can Lyme Disease Be Prevented

Most people with Lyme disease get the infection during the late spring, summer and early fall when immature ticks are out feeding. In warm climates, few tick bites take place during winter months.

Deer ticks are most often found in wooded areas and nearby grasslands. Theyre especially common where the two areas merge, including neighborhood yards where deer occasionally roam. Ticks dont survive long on sunny lawns. They dry out quickly and die.

Although only about 1% of all deer ticks carry Lyme disease-causing bacteria, there are areas in which over 50% of the ticks carry the bacterium. The diseased ticks are often found in the U.S. Northeast and upper Midwest areas. Ticks also live in coastal areas.

Black-legged ticks can get the infection from animals other than deer. Mice, voles and some squirrels can carry the bacteria.

How can I prevent tick bites?

The following tips can help you avoid tick bites:

What Is The Prognosis Of Lyme Disease

Prognosis is excellent and most patients recover completely, especially if treated early with appropriate antibiotics. Sometimes a recurrent infection can occur with certain strains, but Lyme disease can be managed well with medication. Co-infection by other organisms transmitted by the same tick bite can occur.

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The Numbers On Chronic Lyme

Because Lyme disease is commonly missed or misdiagnosed, statistics vary on how many Lyme patients go on to experience chronic symptoms. The following research nonetheless paints a basic picture of the problem.

  • An estimated 5-20% of patients may have chronic symptoms after getting Lyme disease, according to the Columbia University Irving Medical Center.
  • The treatment failure rate for chronic Lyme disease patients was estimated at 26-50% in 2004, compared to 16-39% for early Lyme patients, according to Lymedisease.org.
  • Up to 15-40% of late-stage Lyme patients develop neurological disorders, which are responsible for many common symptoms of chronic Lyme disease.

Experts dont know for sure why some people experience persistent symptoms, even with treatment. However, some believe the Lyme infection may trigger an auto-immune response that manifests in the chronic symptoms detailed below.

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Risk Factors For Post

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Youre at a greater risk for post-treatment Lyme disease syndrome if youre infected by the bite of a diseased tick. If the infection progresses to the chronic stage, your symptoms might continue for weeks, months, or even years after the initial tick bite.

You may also be at a higher risk for these long-term symptoms if youre not treated with the recommended antibiotics. However, even people who receive antibiotic therapy are at risk. Because the cause of post-treatment Lyme disease syndrome is unknown, theres no way to determine whether it will progress to the chronic stage.

Typically, the symptoms of post-treatment Lyme disease syndrome resemble those that occur in earlier stages. People with persistent symptoms often experience lingering episodes of:

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Some Chronic Lyme Disease Symptoms

As mentioned, chronic Lyme disease consists of a broad cluster of physical, cognitive, and psychiatric symptoms. Some of these symptoms are much more common, while others almost never occur, but can be deadly. But even the less severe symptoms, such as chronic fatigue and pain, can lead to drastic changes in quality of life for chronic Lyme patients.

Chronic Lyme survivors have reported experiencing the following symptoms for months to years after infection:

  • Intermittent fevers, chills, and sweats
  • Chronic inflammation

Chronic Lyme disease can be linked to deadly symptoms, such as Lyme carditis .

According to Lymedisease.org, studies consistently show that chronic Lyme disease patients have poorer quality of life than those with other chronic diseases. One of their own studies showed that 75% of surveyed patients reported at least one symptom as severe or very severe.

Complementary And Alternative Therapies

You should never treat Lyme disease with complementary therapies alone. Only proper antibiotic treatment can cure the disease and avoid complications.

Newsletters and Internet sites have cropped up in recent years advertising untested treatments to people with symptoms of post-Lyme disease syndrome or so-called “chronic Lyme disease” who are frustrated with standard medical treatment. Some remedies may be dangerous and ineffective. Always tell all of your doctors about the herbs and supplements you are using or considering using.

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